APARDO congratulates Prof. Ramaiah Muthyala and the Indian Organization for Rare Diseases (IORD) on his recent feature at the Biotech Express Magazine.
A recent webinar hosted by the Federation of Asian Biotech Associations (FABA)-US Chapter featured an enlightening discussion by Prof. Ramaiah Muthyala, President of the Indian Organization for Rare Diseases (IORD). He addressed the pressing challenges of rare diseases (RDs), particularly in India, while drawing lessons from global healthcare models.
With over 70 million affected individuals in India and 350 million worldwide, rare diseases pose significant socio-economic and healthcare challenges. Prof. Muthyala highlighted critical disparities, from the high cost of orphan drugs—like Zolgensma at $2.1 million per patient in the U.S.—to India's struggles with limited diagnostics, fragmented policies, and unaffordable treatments. While progress has been made through initiatives like India’s National Policy for Rare Diseases (2021), gaps in implementation persist.
How can India bridge these gaps and improve access to rare disease care? Read the full article on Biotech Express Magazine to explore expert insights and proposed solutions.
The Indian Organization for Rare Diseases is co-organizing a webinar titled: "Urgent Need for a Unified Approach to Tackle Rare Diseases in India"
Webinar details:
February 9, 2025
11AM (IST) via Zoom and YouTube
For more information, please see below:
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